Registration No IT 1010/2012/PMB
Supporter of SACFA
DUM SPIRO SPERO – While I Breathe, I Hope
Dear Family and Friends,
The year is marching on and for a long time I have not been well enough to do much. I last updated you all in March, more than 3 months ago, a quarter of 2016 gone and I cannot even think back to that time. Life became a blur of monotony, sleeping, waking, nibbling and sleeping more.
After I was released from hospital near the end of March I came home to see Zorro and Switch, feeling sad that both Angel and Yash had died the day of my admission. It is still a very raw memory for my mom who witnessed the day’s events and had to deal with those first few days mostly on her own. By the time I returned home Zorro and Switch were best friends and their own longing for the other two horses appeared to be over.
Once home I felt that my 2 weeks in hospital had been a huge waste of time. I felt much the same as on admission, breathing was difficult, energy levels very low, stamina to do anything almost non-existent. I picked up a cold somewhere, which thankfully stayed ‘a cold’. On my mom’s insistence I stayed in bed, dosed myself up and rested so it would not develop further and move to my chest. The nice thing about being in bed was being waited on hand and foot, being brought meals on a tray to my room, snacks at intervals and plenty of fluids. Feeling better sucked as I then had to fend for myself again…haha.
The beginning of May, I went away down the coast for a few days with friends and family. It was nice to get away and we had great fun together. I returned in time to help my mom with Mothers’ day baking orders. I have seen on various CF Fb pages, that cfs are saying we should live by the sea. Due the air being salty it helps. So maybe that is a plan, go to the beach more often.
The rest of the month and up to the beginning of June I kept going with the admin work for my mom and I and our baking business. We do 3 markets in a month at the moment and by August are hoping to have another 2 markets that we attend. We have also started going on a Friday morning to a business park and visiting a few businesses with our baking goodies. Private orders have also been coming in regularly so all in all we are keeping out of mischief and managing to pay some of my bills.
June I was admitted again and I was shocked that my stats had gone down so far. My lung function decreased by 10 percent and on admission was only 20%. My weight also dropped by 8 kg and my doctors were very concerned. Two weeks in hospital and both picked up again but I still need to work on everything overall to stay on the transplant list.
These days I take things very much one day at a time. When I wake up I am grateful for a new day and at the end of the day I am happy I have managed to achieve something in my life. I have to take care of myself for ‘me’ and looking ahead to a future with new lungs, better health and happiness with in my life is my dream and my goal. I can extend my dreams as life goes gets better…. For now my life stays simple and achievable.
I trust you are all well and I want to thank you all again for your support. On the days that I am down and things look bleak I only need to contact any one of you to soon realize that you are what make my life worthwhile. Thank you so much, I am truly appreciative and humbled by your unfailing love.
God bless you always
<3 <3 NiQi <3 <3
Bank : First National Bank
Account Name : The Fabulous and Fighting CF Trust
Account Number : (ZA) 62371509062
Branch : Midlands Mall
Branch code : 250655
Account Type : Current