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Friday, June 28, 2013

Crafts

Hello Everyone :-)

At some stage in a Cystics life, it becomes too difficult to work. The stress of work and the hours we work both contributes to us becoming sick and that is why a number of CF's are on disability grants.

In earlier years, Cystics biggest goal in life was to finish high school. We didn't plan for after high school, because we thought, "well why should we, we aren't going to be alive much longer,have nothing to live for, further than matric, so why even bother."
Then all of a sudden, you finish school, and you realize, "Woah , hang on a minute, I have made it this far in life, but, what now? I haven't planned a future?"

Oh dear!! What ever shall I do? Should I study? Should I work?

A lot of CF's that I know, have gone straight from matric, to the working world, because we haven't even thought of tertiary education.  It is amazing how life suddenly changes.

That doesn't mean however, that we have to sit around all day being depressed, doing nothing and feeling sorry for ourselves.

I have had a few jobs in my lifetime....
When I finished school, I worked as a PA/ Secretary at a Roofing Company in Menlyn,which paid REALLY well. haha.

Then sadly after just 3 months I was retrenched/ let go, because my boss wanted to have a PA/Secretary, who could do book keeping as well.

After that, I sat around at home for about 6months, just vegetating. I then received a call from a friend at the time, saying that they were in need of facilitators at their camp for 2 weeks and would I be interested? Of course I said "yes". I Immediately loved working there, interacting with the children, delegating them, telling them what to do and guiding them in right from wrong! Haha.

Once that two weeks was finished, the boss of the campsite approached me and said that she could see I was a hard worker, handled situations with ease and I interacted with the children and the staff really well. She reckoned  that I have managerial qualities, and asked if I would I be interested in working for her, learning to manage the campsite and she will teach me how to do her books.

I worked for her for about a year, and then management changed hands. Luckily the new owner took me over to help him. We were contracted to the Nigerian government doing a rehabilitation program for militant rebels. I really enjoyed it most days, but when things started going sour. I ended up having body guards which was pretty cool because I realized my celeb status - lol, but then it became scary. Especially when the Nigerians rioted. That only lasted about 6 months,  the program went cold turkey and I lost my job :-(

I then proceeded to work at an accounting firm, but that only lasted 8 months. This job was reaaaaaallllyyyyy stressful and I just kept getting sicker and sicker, until I eventually had to resign, for health's sake. My health comes first.

So since July 2012, I have been at home. I haven't  been sitting around doing nothing though.... I have kept myself busy. I have my horses which I train and ride, I then take photos for people every so often and I babysit as well.

At the moment, I am helping out a lady with 'craft' things and I am enjoying it because I can do it from home and in my own time.   :-)

Here are a few photo's showing someof the things I have been making for her.

 so this is it today, still  Fabulous and Fighting ..... always xoxox






       


 


Wednesday, June 26, 2013

Newspaper Article

FOr the month of may, articles were written about Cystic Fibrosis in our local Newspaper, to try and Raise awareness .

I am quite proud of mom and my articles :-)

Have a look! :-D





Tuesday, June 25, 2013

Afternoon walks

As you know, Exercise is really beneficial for Cystics. So naturally, we are supposed to be doing something to help us get fit, and to help clear all the mucus out of our chests. But as you can all agree, exercise is not all our cup of rooibos tea.

I will admit, I am not as diligent in that department as I should be, However I am getting better lately .

As you may know, we have 3 new puppies, Barney, Molly and Todd. Mom, dad and myself now take walks around the farm with the puppies, on their leashes to start leash traning them. We only started yesterday, but it is so much fun. Yesterday we had to initially drag the puppies , but after a short while, they were in the swing of things. Now tonight, the two boys were even pulling mom and myself along. At 4 months old they are really strong, I can only imagine how strong they are going to be in a few months time. haha

The walks seem to be doing me good, its really great physio, and I dont get too tired :-) Mom and I are going to up the walk to twice a day. We will then be walking 2kms a day... Shew, maybe I can do the comrades by next year. Lol

Hopefully, I can stick with this exercise, and get nice fit and healthy for when it is time for my lung transplant. :-)

But for tonight , I am just plain Fabulous and Fighting :-)













Friday, June 21, 2013

Physio for the Day with Mom and Zorro

Zorro has been a little naughty lately, as I havent really had the energy to work him, So mom decided to step in and help :-) This is what we did today.

Even though I was only placing the jump and taking the photos/videos, I still got all breathless. But, I do get credit for walking to the bottom of our 8.5 Hectare plot to Fetch him :-)









Wednesday, June 19, 2013

My Peg :-)

A quick Video of how I 'Plug in' at night time :-)

 Phase 1- Flushing



                                               Phase 2- Plugging in





                                                              Phase 3

Friday, June 7, 2013

Goodbyes...

These last two days have been very emotional for me.

Yesterday afternoon my Family and I lost a dear friend to cancer. 

Oom Gert lost his battle with cancer yesterday afternoon. He was a steadfast Pillar in our community, He was always the first to react and help in any situation. He had no fear and a heart as big as the universe. 

OOm gert always used to tease me about why I went to hospital, He said I only ever went to hospital to go and check out all the cute male doctors :-) I wasnt really sick, I was just doctor hunting. Haha.

You always knew when Oom Gert was around, you could hear his little yellow Kalahari Ferrari a mile away. We are going to miss you so much.

He was a wonderful man. And may he rest in Peace. May you have a special place in Heaven.

THoughts and prayers go out to Tannie Memory and the family.

<3 <3 Love you OOm! 





This morning I found out that I lost a dear friend, and Fellow CF Fighter.

I have known Landi for the past 7 years of my life. The past 18 months have been very difficult for her, and last night her body decided to give up.

Her suffering has finally ended. She is no longer in pain. 

Landi you will be missed dearly. You always had a smile on your face. 

Steve Biko will miss you greatly.

We will always remember you, and your gorgeous shoes and super sexy nails.

My thoughts, prayers and condolences are with Landi's mom. May you stay strong and the angels guide you.





Life is full of surprises, You never know what tomorrow holds.
Take care of yourself, and tell the people you love, that you Love them.

This is to all the people in my life who are Fighters. We salute your courage and strength.

Saturday, June 1, 2013


Hey all. I know this has been posted on Facebook. But this is for those whom just read my blog and not facebook.

This is a video of a few of the things I got up to in my recent stay at hospital for my 2 week Iv treatment.

Enjoy!