Headaches....

Since discharge from last admission in January, I have been struggling with headaches.

I don't know why, or how they have come about, but I am assuming they are tension headaches. it always starts in the right side of my neck at the back of my head. And it seems to be getting worse.

I slept 90% of the day today. I can only imagine what a Migraine must feel like, and I salute  the people that live through them. You are Brave.

There seem to be a number of possibilities and factors. I spoke to my doctor and she told me that I have an excess of Carbon Dioxide floating in my body, that's a reason for the  headaches, and also for my, well I'd say memory loss. It's not really memory loss, I just forget things, and forget about things that I had to do. Also when I am speaking to somebody, my brain almost has that dreaded "Loading" logo running, before I find the words to respond.

Second option is my sinuses, I have battled with sinus for as long as i can remember. In the year 2000, I had nasal Polyps removed, and since then, nothing has really been done. So, today I went for a Sinus CT and the Doctor didn't seem concerned, or maybe he did. i was fast asleep when he came to spoke to me, so i only remember the last half of the conversation.

Option 3, is tension, and I think that this is the main issue. I cough a lot, and Violently, it puts a lot of pressure and strain on my head, and shoulders... well, on my whole body actually. I think that is where it all started, I have a knot in my neck, that isn't budging. It could also be my sleeping position. I could be putting strain on my neck.

In my opinion, I reckon that it is all 3 of those options combined. Lets see if tomorrow, my heads a little better.

Stay Fabulous <3

Clinic Visit Feb 2015

I know I haven't written in a while, but here is a quick update :

so today was my 1 month post admission clinic visit, and it didn't go too well. I have been struggling for a while now, and today my results showed it.

My lung function is only at 28%, it as dropped by 7% since discharge in January. It is a little concerning, and I am more breathless and tired. I struggle to do things without getting tired. Using the Oxygen a lot more, and I have more frequent naps as well.

But other than that, I am doing well, my weight is stable, at 58.6kg's, and my sugars look good. My Doctor gave me a few signs to look out for, and if any of them present, I'll most probably have to be admitted again. Let's hope not, as I would really like to be at home for longer than month. ;-D

Lots of love to all <3 <3

Something to Live for

When I was about 8 or 9 years old, Debbie and Sam Cross walked onto our property in KZN looking for grazing for their horses. This is where my love of horses steamed from. Over the years, Sam and I became the best of friends. Auntie Debbie taught me how to ride and look after a horse, how to muck out stables, feed them,groom and tack them up. She taught me how to be responsible. I will forever be thankful to the Cross family for welcoming into their home like a daughter, and introducing me to the equestrian world.

People often think having horses is easy, all you do is ride them. That is most definitely not true. There is more to it than meets the eye. And 3 years ago, this love and responsibility has gotten me to where I am today.

Support Systems

I thought I would share one thought with you.

Obviously having a lung transplant has been on my mind a lot over the last few years and it has and still is my goal.  I don't know why God has chosen me to be the one who just seems to be getting better and better, but I sure do know that it is not because I am in any way special.  I like to think that it has more to do with compliance and doing, or at least trying to do what the doctors tell me to do.  It is  and has not been easy, and everyone who is close to me will tell you that there are days when they want to pull their hair out with me - especially my mom - but I know that they are a right royal pain in my butt because they love me.  You will often read of others who compliment and say thank you over and over again to their 'support system' and the same goes for me too.  Truth be told, if they didn't care as much as they do, then I would probably not have pulled through all those years ago.

My mom is my moral fibre and if I even think about doing something that the doctors have said no to, then she has the ability to turn my way of thinking to one of absolute compliance.  My brother and I have been brought up with our parents drumming into our heads, that for every action there is a reaction.  It certainly has set us on the path to righteousness and in my case honouring my body.  Yes I went through the usual things any CF does, like hiding my medication away so no one would know that I had to take pills every day; and not being completely truthful about the extent of my disease, but at the end of the day, I have tried.  The last 3 years have made me more determined than ever and now having finally been listed, I see that I am one step closer to the reality of a transplant taking place.

You may wonder where I am going with this, but just be patient - and read on....

It's Today

The day before I get to go home, is always a nerve wrecking day. And just like every other "the day' before this one, I was just as nervous.

This is the day, that tells me whether or not, I get to go home, or if I am staying another week in hospital.

But today, is a good day. Let me tell you why.