The Results are out...

As you may recall, I posted on my fb Group https://www.facebook.com/groups/392256720827792/, that Kyle was being tested to see if he is a carrier of Cystis Fibrosis. 

We received the results today. We are both relieved and thankful to the Lord for this Blessing.

Here is the letter I received.

Dear NiQi

My apologies for e-mailing these results & not waiting for our consultation but as the results are good news & I know that you & Kyle are both anxious about the results, I thought that I’d give them to you before our next appointment.

Kyle DOES NOT have any of the 30 common South African CF causing mutations. This reduces his risk of being a carrier of a CF gene to 1 in 200 (compared to the general SA Caucasian population of 1 in 20). This then reduces your risk as a couple of having a baby with CF to 1 in 400. If you were ever to have you own biological child, that child would always be a carrier for CF (i.e. have one gene from you)

The only way that your baby could have CF is if Kyle carries one of the rarer CF mutations less common to the South African Caucasian population.

We’ll discuss this further at your next appointment. Please make a list of any questions that you have.

Regards

Fabulous and Fighting needs your help

The Fabulous and Fighting CF Trust Fund started off with a BANG in 2012...

Things were going very well, the fund grew, and grew some more. People were very generous opening their hearts (and Wallets- Hehe).. and I cannot say thank you enough to everybody who has donated since the funds inception.

A massive thank you must also go to everybody who has had fund raisers for me, no matter how big or small, they have helped more than you know.

Headaches....

Since discharge from last admission in January, I have been struggling with headaches.

I don't know why, or how they have come about, but I am assuming they are tension headaches. it always starts in the right side of my neck at the back of my head. And it seems to be getting worse.

I slept 90% of the day today. I can only imagine what a Migraine must feel like, and I salute  the people that live through them. You are Brave.

There seem to be a number of possibilities and factors. I spoke to my doctor and she told me that I have an excess of Carbon Dioxide floating in my body, that's a reason for the  headaches, and also for my, well I'd say memory loss. It's not really memory loss, I just forget things, and forget about things that I had to do. Also when I am speaking to somebody, my brain almost has that dreaded "Loading" logo running, before I find the words to respond.

Second option is my sinuses, I have battled with sinus for as long as i can remember. In the year 2000, I had nasal Polyps removed, and since then, nothing has really been done. So, today I went for a Sinus CT and the Doctor didn't seem concerned, or maybe he did. i was fast asleep when he came to spoke to me, so i only remember the last half of the conversation.

Option 3, is tension, and I think that this is the main issue. I cough a lot, and Violently, it puts a lot of pressure and strain on my head, and shoulders... well, on my whole body actually. I think that is where it all started, I have a knot in my neck, that isn't budging. It could also be my sleeping position. I could be putting strain on my neck.

In my opinion, I reckon that it is all 3 of those options combined. Lets see if tomorrow, my heads a little better.

Stay Fabulous <3

Clinic Visit Feb 2015

I know I haven't written in a while, but here is a quick update :

so today was my 1 month post admission clinic visit, and it didn't go too well. I have been struggling for a while now, and today my results showed it.

My lung function is only at 28%, it as dropped by 7% since discharge in January. It is a little concerning, and I am more breathless and tired. I struggle to do things without getting tired. Using the Oxygen a lot more, and I have more frequent naps as well.

But other than that, I am doing well, my weight is stable, at 58.6kg's, and my sugars look good. My Doctor gave me a few signs to look out for, and if any of them present, I'll most probably have to be admitted again. Let's hope not, as I would really like to be at home for longer than month. ;-D

Lots of love to all <3 <3

Something to Live for

When I was about 8 or 9 years old, Debbie and Sam Cross walked onto our property in KZN looking for grazing for their horses. This is where my love of horses steamed from. Over the years, Sam and I became the best of friends. Auntie Debbie taught me how to ride and look after a horse, how to muck out stables, feed them,groom and tack them up. She taught me how to be responsible. I will forever be thankful to the Cross family for welcoming into their home like a daughter, and introducing me to the equestrian world.

People often think having horses is easy, all you do is ride them. That is most definitely not true. There is more to it than meets the eye. And 3 years ago, this love and responsibility has gotten me to where I am today.