The
Fabulous & Fighting CF Trust
Registration
No IT 1010/2012/PMB
Supporter
of SACFA
DUM SPIRO SPERO – While I
Breathe, I Hope
Newsletter No. 1/2016
Dear Family and Friends,
I hope you all had a lovely peaceful and restful
Christmas period and managed to safely see in the New Year. I am not a philosophical person by nature and
do not make New Year resolutions, which I know I would not keep, but I am
believing in a year that will bring me strength to see me through the difficult
times and faith to know that God is in control of my life. That being said, I will embrace to the best
of my ability all that comes my way with as much positiveness as I am
able.
Since I last wrote I have managed to keep the summer
bugs away and hopefully the worst time of year for me is now over and done
with. The cortisone seems to have helped with my asthma and kept it under
control with limited whistling and wheezing.
I confess I haven’t been very active of late as the energy levels have
sapped a bit with the hot summer days and the best exercise I get is walking
down and up our steps. The rainy, cooler
days in between are a wonderful boost to me and the reason I think that I have
managed so well so far. I will not lie,
my happy bubbly spirit is tired at times and I have taken to resting more
often. As ever I push myself to go for
as long as I can without resorting to using my oxygen during the day but I
continue to use it while I am sleeping.
The never ending story of medical aid and gap cover
continues which does little to alleviate the stress I feel at trying to sort it
all out. Just when I think all is well I
receive another email with yet another tail with a twist. I guess it is one of the things that I have
to deal with and together with my mom we are slowly working away at it all.
I went to clinic almost two weeks ago and my doctor
was happy with my progress. She said
that it looks like the move has been good for me as my lung function increased
to 30% again, wheezing and all. My
weight is still a bit low for transplant but my appetite is still good and I am
eating well balanced regular meals.
I am
being admitted for treatment again on 2nd March and will probably
stay the full two weeks as between medical aid and gap cover neither seem keen
to pay for my TTO’s (medicines I am sent home with to continue my treatment
until 14 days is completed.) It will be
a lonely time for me as my mom and dad will not be able to stay away from home
for so long…dad must go to work otherwise it piles up and takes him a while to catch
up.
My mom and I have started baking and have a table
with cupcakes at the Farmers market early on Saturday mornings. We are only allowed to make and sell them as
there are already two other ladies baking cakes and tarts etc. My task is the admin and PRO work and mom
bakes and ices. Any other orders are
welcome and we are not limited in doing anything else.
We are trusting that we will soon be making
enough to cover my expenses of medical aid and clinic etc which will take the
burden away from fund raising in our weakened economy and we will hopefully be
able to build the trust fund up again ready for transplant.
Well I think this is all my news for now and as I
leave you I remind you of my motto – ‘Dum Spiro Spero’ While I breathe I
hope.
This is after all what my life is
all about….one breath at a time. Thank
you for reading this. Thank you for
supporting me.
Thank you for
understanding how much I need you.
God
bless you always
<3
<3 NiQi <3 <3
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Bank : First National Bank
Account Name : The Fabulous and Fighting CF Trust
Account Number : (ZA) 62371509062
Branch : Midlands Mall
Branch code : 250655
Account Type : Current
Swift Code Firnzajj
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