Onward and Upward

Today was a big day for me, in fact a very beeeeeeeg day indeed.  It wasn't just that it was clinic day but also the day to talk to my doctor about 'where to now'.  I emailed my medical aid a few days ago to find out whether my exclusion period is over and yesterday I received confirmation that it is.  YAHHHH!!!!!!!  My start date with them was 1st June 2013 and according to their mail, exclusion was over on 3rd June 2014.  When I started the year I thought to myself, how will I ever get through this next year and now here we are and it is over and done with.

So as you know I haven't been feeling great this last month or so.  Having 10 days of Ciprobay help for a bit but I'm still not doing well...sigh...  Going to clinic I was both nervous and excited.  Nervous because I knew my weight would be down again and possibly my lung function, and excited because I feel I am one step closer to getting some new lungs.

So now that I'm officially on medical aid I have to say 'goodbye' to Charlotte Maxeke.  It is amazing that my first appointment to the clinic there, my dad wheeled me in  in a wheelchair, my lung function was 17% and I weighed 45 kg. A year and a half later and I weigh 52 kg, my lung function is 30% and oxygen levels at 85%.  I am blessed...I have made new friends, awesome friends and met the wonderful caring staff of ward 496.  The friends I will keep forever, of that I am sure... It's not quite goodbye for ever as until I am actually listed, I can continue to attend the clinic.  My next IV's are going to be at Milpark Hospital which will hopefully mean admittance on 17th June and while I am in I will meet the transplant team and undergo a whole load of tests.  The team meet once a quarter and apparently have just recently had a meeting, so I will have to wait a couple of months before hearing their decision.

So there we are, the ball is rolling in a new direction and hopefully I will knock their socks off and make that list.